Thursday, February 25, 2010

Diagnosis.

Our sweet baby boy was diagnosed with Craniosynostosis this week. Basically that means the sutures in his skull fused too soon and are causing irregular bone and brain growth. You can find more information on that here. We know his sagittal suture is fused and possibly part of his coronal. Tomorrow I will meet with a neurosurgeon at CHOC, they will run a few more tests, and get more information on his specific problems. Everett will definitely need surgery, probably in the next month or so. The surgery consists of cutting out the fused bone and reshaping the remaining bone, so the brain can grow and develop. Without surgery, the brain would most likely be damaged and the shape of his head would become more and more deformed.

No comments:

Post a Comment